Yet another year is coming to a close! We are grateful to the ECD community for continuing to support the organization in its mission to serve families around the world. With the help of countless donors, volunteers, and medical professionals, the ECDGA has been able to support patients and research efforts dedicated to ECD around […]
We are 10 YEARS STRONG!! The ECDGA is raising funds for the future and we need your help! We ask you to request 10 of your friends or family to donate $10 each for a 10-week celebration! From October 10 to December 12, the 10-10-10 event will be our simplest year-end fundraiser ever! Here are some […]
Matriarch, President and Founder of the ECD Global Alliance: Kathleen Brewer. Over the last 10 years, Kathy kept her promise to never stop searching for answers. Kathy’s perseverance through the trials and tragedy led her to what the ECD Global Alliance is today. Alongside the parents of an ECD patient, who has since passed away, […]
7th Annual ECD Medical Symposium Milan, Italy July 11, 2019 “ECDGA provides important resources for my patients that has led to faster diagnosis. It also provides a community for patients with a rare disease to feel less alone.” – Mark Heaney, MD, 2019 Attendee
Last updated: February 10, 2020
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