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Consensus Document: Patient Use & Benefits

What is a consensus?  A medical consensus is a report on a specific subject, such as Erdheim-Chester Disease, from a group of medical experts that have a particular knowledge of the disease. This group of experts agree on evidence-based and state-of-the-art (state-of-the-science) knowledge. Its main objective is to counsel physicians on the best possible and […]

Research

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Community Connections During COVID-19

The intent behind our blog is to update our members with important information that can affect the daily lives of ECD patients and their families. We try to provide this information with the assistance and guidance of our trusted medical professionals. Due to the increase in COVID-19 cases worldwide and the need for all our medical professionals to be on the front lines, our blog […]

Living with ECD

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COVID-19 (corona) Virus Precautions

We are all aware of the COVID-19 virus (coronavirus) risks that are currently in the news.  In light of this and on the advice of the CDC, it is prudent for anyone with underlying medical conditions to take precautions.  Please see – https://www.cdc.gov/coronavirus/2019-ncov/specific-groups/high-risk-complications.html  – for CDC guidance.  In summary, the CDC recommends:  Stock up on supplies (medicines, household items, […]

General News

Last updated: March 15, 2021

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  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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