As spring slips away and summer is within our grasp, our natural urge to enjoy the great outdoors intensifies. However, even limited sun exposure can be dangerous to ECD patients under some targeted-therapies. If you are being treated with a BRAF or MEK-inhibitor, or simply enjoy being outside in the summer, ensure that you are […]
Living with a rare disease can be hard: mentally, physically, and even financially draining. A 2013 survey called the Rare Disease Impact Report (conducted in the US and UK) asked patients, healthcare professionals and payers (who finance healthcare within a country’s health system) for their perspectives on the impact of rare disease. Almost all the 20 payers included in the […]
Last updated: May 19, 2020
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