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New Paper Details Challenges of Caregiving for ECD and Rare Disease Patients

New Paper Details Challenges of Caregiving for ECD and Rare Disease Patients A new paper published in Lancet eClinicalMedicine, details both the meaningful benefits and the challenges of caregiving for patients with rare cancers, such as Erdheim-Chester Disease (ECD). The paper was created through a collaboration of physicians and health organizations, including the Erdheim-Chester Disease Global […]

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Education & Support for ECD Patients Living in China

The ECD Global Alliance has partnered with lead physician Dr. Xinxin Cao of Peking Union Medical College Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College (CAMS&PUMC) to host the webinar Understanding My Rare Disease with Dr. Cao. On September 29, 2022, the initiative brought over 65 families from the China region together […]

Living with ECD

Last updated: November 2, 2022

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    DeRidder, LA 70634 USA

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