Rare Disease Day 2022

Rare Disease Day is on February 28, 2022!  In the United States, a disease is considered rare if it affects fewer than 200,000 Americans, 7,000 illnesses fall into this category, with 1 in 10 Americans being affected. Patients that have a rare disorder have longer periods of suffering before finding answers.  Often, patients are treated “off-label” (treatments […]

Living with ECD