rare connect
We are 10 YEARS STRONG!!
The ECDGA is raising funds for the future and we need your help! We ask you to request 10 of your friends or family to donate $10 each for a 10-week celebration!
From October 10 to December 12, the 10-10-10 event will be our simplest year-end fundraiser ever! Here are some tips to get your network ramped for giving!
How to Invite Donors
- Send a letter or email explaining what the organization is about and how it has helped you on your journey
- Post the donation request to your social pages, tagging others to donate
- Host donation page in memory of a loved one
Social Media Help
- Join in the conversations on the ECDGA social pages found HERE
- Use the media hashtags to get more views of your post: #10yearsstrong, #raredisease, #ErdheimChester, #rarecancer, #endECD
- Tag your friends so that they can see your fundraising efforts by using the @ symbol in front of their name
Global Community Ideas
- Spread the word in other languages by
- Contact the news media in your country to write a story about your journey
How do donations help?
- $10 = Sends educational information to 10 physicians
- $25 = Provides monthly website service to share information
- $50 = Pays one month of phone service for patient calls
- $75 = Covers a communication moderator throughout the week
- $100 = Provides medical literature to a university
Thank you for considering this opportunity to help the ECDGA continue on its mission to help all those affected by Erdheim-Chester!
