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October 6, 2014

Update Information for October 6, 2014 (V 2.48) The “Main” page was updated to include: –  Picture of the 2014 ECD Medical Symposium Attendees –  Picture of the 2014 ECD Patient and Family Gathering Attendees –  Information about the 2014-2015 Fund Raising Challenge.  Please help us! –  Information about the 2015 ECD Research Grant Opportunities. […]

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June 13, 2014

Update Information for June 13, 2014 (V 2.47) The “What is ECD?” page was updated to provide more current information regarding ECD symptoms, treatments, and clinical management based on the most current research. The “Main” page was modified to include a film produced by the Histiocytosis Association with Dr. Robert Arceci providing an Overview of […]

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March 17, 2014

Update Information for March 17, 2014 (V 2.46) The “Main” page was updated to include information about The 2nd Annual International ECD Patient and Family Gathering to be held in Bethesda, Maryland USA, on September 19-20, 2014. The 2nd Annual International ECD Medical Symposium to be held in Bethesda, Maryland USA on September 18, 2014. […]

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February 3, 2014

Update Information for February 3, 2014 (V 2.45) The “Grants” and “Main” pages were modified to provide the announcement calling for Letters of Intent related to the 2014 ECD-GA Grant award cycle. The “Main” page and the “What’s New?” page were modified to include the 2013 End of Year Report. Updated the Case Log as […]

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Last updated: July 10, 2015

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