Update Information for December 18, 2013 (V 2.44) The “Main” page was modified to include the following: Summary of the 2013 ECD Medical Symposium Summary of the 2013 ECD Patient and Family Gathering The “What is ECD?” page was modified to include more up-to-date information about ECD treatments and to provide information about how ECD […]
Update Information for November 20, 2013 (V 2.43) The “Main” page was modified to: Remind medical professionals to put the 2014 ECD Medical Symposium on their calendars for September 18, 2014. This event will be held at the National Institutes of Health (NIH) in Bethesda, Maryland, USA, just outside of Washington, DC. A pamphlet from […]
Update Information for September 20, 2013 (V 2.42) New physicians,familiar with ECD, were added to the “Physicians” page. Their information is as follows: Ronald Go, MD Mayo Clinic Department of Hematology 200 First Street SW Rochester, MN 55905 USA Telephone: 507-284-2176 e-mail: go.ronald@mayo.edu Prof. Claudio Doglioni, MD Unit of Pathology San Raffaele Scientific Institute Università […]
Update Information for August 3, 2013 (V 2.41) New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows: An article published in the J Am Acad Dermatol. The article is entitled, “Diabetes insipidus, bone lesions, and new-onset red-brown papules […]
Update Information for June 7, 2013 (V 2.40) The “Physicians” page was updated to add contact information for the following doctors with ECD knowledge. Omar Abdel-Wahab, MD, an oncologist from Memorial Sloan-Kettering in New York Raajit Rampal, MD, PhD, an oncologist from Memorial Sloan-Kettering in New York Ekaterina Bulycheva, MD, an internies from St.Petersburg State […]
Update Information for May 12, 2013 (V 2.39) The “What is ECD?” page was updated to show that some male ECD patients having abnormally low levels of testosterone have reported feeling better after being placed on Testosterone Replacement Theraphy. The “Physicians” page was updated to add contact information for Dr. Juvianee Estrada-Veras at the National […]
Update Information for April 24, 2013(V 2.38) The “Home” page was updated to provide a link for medical professionals to register for the ECD Medical Symposium to be held on October 31, 2013 in San Diego, California. The “Home” page was updated to provide a link for patients and family members to register for the […]
Update Information for January 31, 2013(V 2.37) The “Home” page was updated to encourage medical professionals to hold October 31, 2013 open to attend the first International ECD Medical Symposium to be held in San Diego, California. Patients and family members are encouraged to hold November 1-2, 2013 open to attend the first ECD Patient […]
Last updated: July 10, 2015
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