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February 28, 2011

Update Information for February 28, 2011 (V 2.14) The Patient-to-Patient page was modified to add links to two newspaper articles about ECD Patients:  POKIN AROUND: Cottleville, Missouri couple blindsided by rare, deadly disease  and Almost Alone:  Jefferson County man is one of the few with Erdheim-Chester Disease.  Another link was added to this page pointing […]

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January 31, 2011

Update Information for January 31, 2011 (V 2.13) The Home  and How Can I Help? pages were modified to include information about an ECD study being done in Italy under the direction of Dr. Augusto Vaglio.  This study needs medical records of ECD patients to be successful.  This is a chance for ECD patients to […]

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Last updated: July 10, 2015

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