News for Dec. 24, 2009 (V 2.0) New links were added to the published articles found on the “Technical Papers | Published Papers” page. They are: Guo J, Wang J. Adult orbital xanthogranulomatous disease: review of the literature. Arch Pathol Lab Med. 2009 Dec;133(12):1994-7. Granier M, Micheau A, Serre I. A rare cause of cardiac […]
News for November 28th, 2008 An update was made to the ‘ECD Global Alliance’ page to provide status of the ECD Global Alliance efforts to formalize into an official non-profit organization. A change was made to the ‘Home’ page to update information regarding the Histiocytosis Association of America (HAA). A reference to earlier efforts by […]
News for Oct. 25, 2009 (V 1.1.16) The latest ECD Newsletter, Issue 4, September 2009 was added to the News/Update page. An ophthalmologist from Germany was added to the “Physicians” page. An update was made to the “Patient-to-Patient | Case Locations” page to show the addition of new cases that have registered with the organization. […]
News for Sep. 14, 2009 (V 1.1.15) An announcement was made on the ECD Global Alliance page that the organization is in the process of obtaining an official non-profit status from the US government. This will allow the organization to begin raising funds to help fund the mission of the organization. This includes hopefully funding […]
News for Aug. 08, 2009 (V 1.1.14) Two new links to published articles about ECD were added to the “Technical Papers | Published Papers” page. They are: Furlanetto TW, Fischer J, Polanczyk CA, Vasconcelos MV. A Multiplication Problem Am J Med. 2009 Jan;122(1):32-4 Surabhi VR, Menias C, Prasad SR, Patel AH, Nagar A, Dalrymple NC […]
News for July 5th, 2009 (V 1.1.13) The latest ECD Newsletter, Issue 3, June 2009, was added to the News/Update page. A group of internists from Milano, Italy with experience treating multiple patients with ECD was added to the Physicians page. A hematologist from Israel was added to the Physicians page. A statement was added […]
News for June 7th, 2009 (V 1.1.12) The ‘Case Locations’ was updated on the Patient to Patient page. This reflects new patients who have joined the group since the last update and corrected a couple entries that we learned were listed incorrectly. An update was made to the Technical Papers | Published Papers. Another paper […]
News for Apr. 21, 2009 (V 1.1.11) A new entry was made to the ‘ECD Studies’ selection. Dr. Augusto Vaglio from Italy has provided the protocol he is using in a pilot study for treatment of ECD with sirolimus and prednisone. The latest ECD Newsletter, Issue 2, March 2009, was added to the News/Update page. […]
News for Mar. 22, 2009 (V 1.1.10) A new selection was added on the ‘Patient to Patient’ page for ‘Case Locations’. The Case Locations list where the ECD patients represented by the ECD Global Alliance are located. An update was made to the ‘Case Log’ found on the Patient to Patient page. This log gives […]
News for Feb. 20, 2009 (V 1.1.9) Additional ECD US knowledgeable doctors practicing in Massachusetts and Minnesota, were added to the ‘Physicians’ page. An additional paper entitled, “Cardiac Erdheim-Chester”, published in 2009 was added to the ‘Published Papers’ page. Changed the listing on the News/Updates Page to show that the Issues listed are Newsletters. Added […]
Last updated: July 11, 2015
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