Access to an additional ECD published paper written in 2006 entitled, “Neurological Presentation of Erdheim-Chester Disease” provided.
The NORD logo was placed on the website. We are pleased to be able to work with the National Organization of Rare Diseases and that they have given us permission to use their logo to show our commitment to supporting those affected by rare diseases.
ECD knowledgeable physicians from Canada, Croatia and Italy were added to the ‘Physicians’ page.
Additional link provided to the NIH-NINDS on the ‘Links’ page.