A new year of hope is on the horizon for the ECD community!

The ECD Global Alliance is reaching new levels of support for those fighting Erdheim-Chester Disease with a matching gift campaign through December 31, 2021!

As we reflect on the trials and triumphs of our community members, we want to thank the supporters that come through for those fighting every single day.  Your support is not just about your loved one, but about the future for all families faced with Erdheim-Chester Disease.  Your provisions have come in all forms, and we appreciate everything you do!

Thanks to an $80,000 matching gift from a group of generous ECDGA Board members and benefactors –your impact on our critical work will go TWICE as far.

Double Your Gift Today!  With your donation, we can make the future brighter for all who have been affected by ECD. Please make a gift today to strengthen our work in the year ahead…and know you will do twice the good!

 

Join Hands with Us for 2022

Over the last two years, the ECD Global Alliance adjusted to the new norms of distancing and travel bans with more online connections.  The Annual Patient & Family Gathering was put on hold during this time, making the July 2019 event the last time our ECD family was able to join face-to-face.  We will continue to press forward with new methods for those that still cannot travel, but will also be offering a live meeting April 7-8, 2022!  Find out more about this event here.

Read about more updates in our Year-End Newsletter!

2020 Newsletter