The “ECD Studies” page was updated to include new studies and update information regarding existing studies.
The “What is ECD?” page was updated to include reported B-RAF inhibitors (vemurafenib) and Etanercept (trade name Enbrel) treatments.
The 2012 End-of-Year Newsletter was placed on the “What’s New?” page.
A link was added to the list of previously published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. It is:
Ceulemans G, Keyaerts M, Verbruggen L, Hoorens A, Boulet C, Verdries D, De Maeseneer M, Ilsen B, Everaert H
Erdheim-Chester disease detected with 99mTc MDP bone SPECT/CT
JBR-BTR. 2012 Jul-Aug;95(4):245-8.
The “Physician” page was updated to show new contact information for Dr. Razelle Kurzrock and Dr. Mark Heany.
The “Patient-to-Patient” page was updated to include:
The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.
Chat summaries were added to the “Chat Room” page.