Update Information for September 30, 2010 (V 2.9)

The most recent ECD Global Alliance Newsletter was added to the “What’s New?” page.

An update was made to the ECD Case Locations page as found under the “Patient-to-Patient” menu selection. This update shows the latest information regarding patients registered with the organization.

Additional ECD-knowledgeable physicians were listed in on the “Physicians” page.  The following were added:
A pathologist from Taiwan
A hematologist from France
Formatting edits were also made to this page.

Chat summaries were added to the “Chat Room” page.

New links were added to the list of published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. They are:
Gerhard W. Goerres · M. G. Gengenbacher · D. Uebelhart
         Erdheim–Chester disease: a pitfall in DXA measurements
            Rheumatol Int. 2010 Jan;30(3):425-8. Epub 2009 Jul 4.

In addition, some broken links were corrected.

Entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:

1. An article published in J Radiology. The article is entitled, “Erdheim-Chester disease with mesenteric involvement” and is written in French without an abstract.
2. An article published in J Rheumatology. The article is entitled, “Erdheim-Chester disease” and is without an abstract.
3. An article published in Blood. The article is entitled, “Rationale and efficacy of interleukin-1 targeting in Erdheim-Chester disease” and includes an abstract.

A change was made to move information about events and fundraisers from the “What’s New?” page to the “How Can I Help?” page.