Update Information for July 15, 2012 (V 2.30)

A matching donation opportunity announcement was added to the “Home” and “How Can I Help” pages.  A private challenge donation has been made to double any donations made to the organization, up to $50,000.  This makes it a great time to give to support patients and their families, while supporting efforts to find better treatment options for ECD.  Online donations can be made at – www.razoo.com/story/ECD-Global-Alliance.

The ECD Global Alliance Timeline as found on the “ECD Global Alliance” page, was updated.

Chat summaries were added to the “Chat Room” page.

The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:

1. An article published in Radiologe.  The article is entitled, “Obscure exophthalmus” and includes an abstract.
2. An article published in the J Clin Neurosci.  The article is entitled, “Xanthomatous hypophysitis” and includes an abstract.
3. An article published in the Clin Nephrol .  The article is entitled, “Pericardial effusion as a crucial presentation of Erdheim-Chester disease in a hemodialysis patient: an overlooked diagnosis” and includes an abstract.

A new link as added to the “Resources | Links” page for Nancy’s House.  Nancy’s House is a non-profit organization dedicated to providing comprehensive respite for family caregivers.