Update Information for February 29, 2012 (V 2.26)

The ‘Caregivers Info‘ page was updated to include more links as follows:

The Caregiving Club – This website offers consulting services and educational content with a message to empower caregivers to prepare to care.

Caring Connections – A national consumer and community engagement initiative to improve care at the end of life.

The ‘Resources | Links‘ page was updated to include more links as follows:

The Simon Foundation for Continence – A non-profit organization with a mission to, “Bring the topic of incontinence out into the open, remove the stigma surrounding incontinence, and provide help and hope to people with incontinence, their families and the health professionals who provide their care.”

Links were added to the list of previously published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page.  It is:

Egan A, Sorajja D, Jaroszewski D, Mookadam F.
Erdheim-Chester disease: The role of video-assisted thoracoscopic surgery in diagnosing and treating cardiac involvement
Int J Surg Case Rep. 2012;3(3):107-10. Epub 2011 Dec 8

Purgina B, Jaffe R, Monaco SE, Khalbuss WE, Beasley HS, Dunn JA, Pantanowitz L.
Cytomorphology of Erdheim-Chester disease presenting as a retroperitoneal soft tissue lesion
Cytojournal. 2011;8:22. Epub 2011 Dec 27

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:

1. An article published in the Nihon Naika Gakkai Zasshi .  The article is entitled, “Case report; an autopsy case of Erdheim-Chester disease involving the lung and heart ” and is without an abstract. [article is in Japanese.]
2. An article published in the Semin Arthritis Rheum .  The article is entitled, “Treatment of Erdheim-Chester Disease with Long-Term High-Dose Interferon-α ” and includes an abstract.
3. An article published in theAm J Respir Crit Care Med.  The article is entitled, “Erdheim chester disease: an unusual fluid overload mimic ” and is without an abstract.
4. An article published in the Int J Surg Case Rep.  The article is entitled, “Erdheim-Chester disease: The role of video-assisted thoracoscopic surgery in diagnosing and treating cardiac involvement. x” and includes an abstract.

Chat summaries were added to the “Chat Room” page.

The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.