Update Information for August 30, 2012 (V 2.32)

Links were added to the list of previously published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. They  are:

Koh TW, M Fadli, SL Vijaya Kumar, Ashutosh S Rao
Rare Presentation of a Rare Disease (Erdheim-Chester disease): A Case Report  
Malaysian Orthopaedic Journal 2012 Vol 6 No 3

Joseph Skalski, William D. Edwards, Eric L. Matteson
Erdheim-Chester Disease with Right Atrial Tumor and “Temporal Arteritis”
Open Journal of Rheumatology and Autoimmune Diseases, 2012, 2, 37-38

Mazor RD, Kesler A, Shoenfeld Y
Erdheim-Chester Disease: An Orphan Condition Seeking Treatment
Isr Med Assoc J. 2012 Jun;14(6):388-9

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:

  1. An article published in Open Journal of Rheumatology and Autoimmune Diseases.  The article is entitled, “Erdheim-Chester Disease with Right Atrial Tumor and ‘Temporal Arteritis’” and includes an abstract.
  2. An article published in Malaysian Orthopaedic Journal.  The article is entitled, “Rare Presentation of a Rare Disease (Erdheim-Chester disease): A Case Report” and includes an abstract.
  3. An article published in Isr Med Assoc J.  The article is entitled, “Erdheim-Chester disease: an orphan condition seeking treatment” and is without an abstract.
  4. An article published in Vnitr Lek.  The article is entitled, “Cladribine is highly effective in the treatment of Langerhans cell histiocytosis and rare histiocytic disorders of the juvenile xanthogranuloma group” and includes an abstract.

The “Grants” page was updated to fix some broken links.

The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.

Chat summaries were added to the “Chat Room” page.

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

Featured Partners

Copyright 2024. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization. EIN# 27-0759192. | Privacy Policy