The Erdheim-Chester Disease Global Alliance is a 501(c)(3) organization. Gifts are deductible to the full extent allowable under IRS regulations. Your donation helps the ECDGA to serve over 450 families worldwide. ECDGA relies on the contributions of grateful patients, families, friends, and others who care. With your help, the ECDGA will continue to promote and fund research, provide support through reliable information and annual meetings, raise awareness of ECD within the medical community and general public, and to be a strong voice in advocating for patients.

NOTE: Some fees may apply to donations made online. There is no fee associated with check donations made to the organization and they can be sent to the address listed below.

If you need more information on setting up a monthly contribution or information on employer matching programs, please contact the organization.

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Donate Online to at Razoo


Donation Checks

Sending in a check to the organization will save processing fees associated with online payments.  Please make your check payable to “ECD Global Alliance” and mail to the following address.

ECD Global Alliance
P.O. Box 775
DeRidder, LA 70634 USA

Corporate Gift Matching Programs

What Are Matching Gift Programs?  These are extensions of corporate philanthropy.  Matching gift programs are designed to be the means by which companies support employee charitable giving. Companies match donations made by employees to a nonprofit of choice.  If your employer participates in this type of program, you can contact your human resources department for more information on their process. This is free money for the organization and is very simple to setup.

Please contact the organization if you need help finding out if your employer offers matching grants.

Monthly Giving

Monthly giving is great way to manage your donations without sacrificing large amounts at one time.  It’s easy, effective, and really adds up over time, helping the organization continue on its mission to serve the community. This method of giving can be organized with your bank or through the Razoo website.  Here are some examples of what different monthly donations support.

Amount per Month

How your monthly donation helps the ECD community
$10 Provide an ad-free chat room for one year
$25 Support ECD education to one doctor
$50 Support activities to welcome new members into the ECDGA
$75 Cover the organization’s insurance for a year
$100 Support an educational ECD presentation by an ECD community doctor


If every family donated $20/month, another ECD research project could be funded! If every family donated $100/month, it would pay for the ECD Registry annual maintenance.

Shop and Donate

amazon-smileThe ECD Global Alliance, Inc. is listed on the Amazon Smile giving website!  Simply shop on, set your organization to the ECD Global Alliance, Inc.,  and 0.5% of your purchases will be donated to the ECDGA!

If you need more information on donations, please contact the organization.

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Last updated: January 22, 2018

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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Copyright 2018. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization