Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.Read More
Join us September 12-17, 2016 for the 2nd annual ECD Awareness Week! The main objective of this event is to raise awareness amongst the general public and medical professionals around the world. More information and tools coming soon!
During the entire month of September, your donations for ECD research will be doubled up to $25,000. ECD Awareness Week is September 12 -17, but you can get started right now in helping us reach our goal of $25,000 by September 30th.