Join us

What is Erdheim-Chester Disease?

Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.

 Read More


  •  $100k FOR

    MEDICAL SYMPOSIUM October 8, 2015

    The 3rd Annual International ECD Medical Symposium will be held at MD Anderson in Houston, Texas on October 8. Medical professionals from around the world will come together to share the latest research findings related to ECD, discuss the care of patients, and develop collaborations to further research. All medical professionals with interest in ECD and ECD patients are encouraged to register.

    October 9-10, 2015

    2015 ECD Challenge

    Please help the ECD community reach a challenge goal to raise $241,000 before October 2015. An ECD patient has challenged all ECD families to give what they can. If each ECD family could donate on average $1,000, this goal is achievable. Without your help, researchers interested in finding better treatment options will go unfunded. Hope relies on research! Please help.


Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

Featured Partners

Copyright 2015. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization