What is Erdheim-Chester Disease?

Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.

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Announcements

  •  PATIENT & FAMILY GATHERING
    October 27, 2017
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    Interested in joining a trial?

    Trials provide treatment and care advantages to patients and to the ECD community. See the list of trials & studies accepting ECD patients around the world by following the learn more link below.

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  •  ECD MEDICAL SYMPOSIUM
    October 26, 2017
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    2017 #ECDAwareness Week

    Join the ECD Global Alliance community during the week of September 11 - 16, 2017 to raise awareness of Erdheim-Chester Disease across the globe! Find out how you can get involved!

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Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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