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What is Erdheim-Chester Disease?

Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.

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  •  2016

    MEDICAL SYMPOSIUM September 15, 2016

    The 4th Annual International ECD Medical Symposium will be held in Paris, France. Medical professionals will come together to share the latest research findings related to ECD, discuss the care of patients, and develop collaborations to further research. All medical professionals with interest in ECD and ECD patients are encouraged to register. Registration coming soon!

    September 16, 2016

    $25,000 Matching Donation Challenge

    Thanks to a challenge donation we have received from an anonymous private donor, all donations to the organization will be doubled, up to $25,000, between now and December 31, 2015! If you can help us raise at least $25,000 between now and December 31, the organization will end up with $50,000! This is enough to fund another research project, potentially bringing us one step closer to finding better treatment options for all ECD patients. Thank you for your support!


Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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