What is Erdheim-Chester Disease?

Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.

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Announcements

  •  2017 ECD EVENT
    Highlights
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    BREAKING NEWS

    The first FDA approval for Erdheim Chester disease has just been announced! In the US, Vemurafenib is now an approved treatment for ECD patients with the gene mutation called BRAF V600. Thank you to all of the researchers, physicians, their teams, and especially to the patients who participated in the study to make this possible!

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  •  ECD MEDICAL SYMPOSIUM
    November 15, 2018
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    2017 #GivingTuesday

    Support the ECD Global Alliance on November 28, 2017 for #GivingTuesday! This will kick off our year-end $25,000 matching fundraiser! Thank you for sharing!

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Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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