What is Erdheim-Chester Disease?

Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.

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    September 16, 2016

    ECD Awareness Week

    Join us September 12-17, 2016 for the 2nd annual ECD Awareness Week! The main objective of this event is to raise awareness amongst the general public and medical professionals around the world. More information and tools coming soon!

    September 15, 2016

    ECD Global Alliance Events

    Find out about ECD community events planned for 2016. Get involved by showing your support and raising awareness of ECD. Contact us to add your awareness event. Thank you for your support!


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