What is Erdheim-Chester Disease?

Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.

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  •  2017 ECD EVENT

    Rare Disease Day 2018

    Worldwide rare disease awareness is on February 28, 2018. This year’s theme is RESEARCH! Join the movement by raising awareness of Erdheim-Chester disease in your community! Learn how to get involved.

    November 15, 2018

    New Research Grant Awarded

    The 2017 Research Grant Award goes to Memorial Sloan Kettering Cancer Center to define the disease-initiating cell population in ECD and compare genetic alterations. Read more in the press release linked below.


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  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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