Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal function is to fight infections. These cells, which are called histiocytes, infiltrate the loose connective tissue of the body. As a result this tissue becomes thickened, dense and fibrotic. Multiple different organs can be affected. Unless successful treatment is found, organ failure can result.Read More
Trials provide treatment and care advantages to patients and to the ECD community. See the list of trials & studies accepting ECD patients around the world by following the learn more link below.
The ECD Global Alliance is soliciting Letters of Intent for funding of research projects focused on the study of Erdheim-Chester Disease. A single grant of 50,000 USD will be awarded. Letters of Intent are due by May 15, 2017. More information and submission forms are in the following link.