ECD Patient Locations

The following lists represent the number of patients currently registered with the ECD Global Alliance; to date, there have been a total of 900 patients registered with the organization.  We believe there are other patients in the world that are either not yet diagnosed or may not be aware of the ECDGA and therefore have not registered.  We encourage all diagnosed ECD patients to register with the organization here at no cost.  For those searching for a diagnosis, please contact us.  We are happy to help you connect with physicians who can aid in a correct diagnosis.

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Click here to view an interactive map of patient locations

 

Registered Location # Patients
Algeria 1
Antarctica 1
Argentina 6
Aruba 1
Australia 38
Austria 1
Azerbaijan 1
Bahrain 1
Belgium 7
Brazil 40
Bulgaria 3
Canada 37
Chile 6
China 15
Colombia 4
Cuba 1
Cyprus 1
Denmark 2
Egypt 2
France 42
Georgia 1
Germany 26
Greece 3
Hungary 2
India 7
Iran (Islamic Republic of) 3
Iraq 1
Ireland 2
Israel 15
Italy 28
Japan 2
Kazakhstan 2
Korea, Republic of 1
Kyrgyzstan 1
Lebanon 1
Libya 1
Mexico 8
Moldova, Republic of 1
Morocco 1
Namibia 1
Nepal 3
Netherlands 11
New Zealand 7
North Macedonia 1
Norway 6
Pakistan 3
Panama 1
Paraguay 1
Peru 2
Philippines 2
Poland 2
Portugal 4
Romania 4
Russian Federation 3
Saudi Arabia 3
Singapore 1
Slovenia 1
South Africa 2
Spain 22
Sweden 3
Switzerland 5
Thailand 1
Trinidad and Tobago 1
Tunisia 1
Turkey 10
Turkmenistan 1
Ukraine 2
United Arab Emirates 2
United Kingdom of Great Britain and Northern Ireland 51
United States of America 425
Uruguay 2
Total 900
Male 61%
Female 39%
Registered US State/Territory Location # Patients
Alabama 4
Alaska 1
Arizona 9
California 60
Colorado 13
Connecticut 5
Delaware 2
District of Columbia 3
Florida 27
Georgia 12
Hawaii 3
Idaho 2
Illinois 16
Indiana 10
Iowa 9
Kansas 2
Kentucky 8
Louisiana 2
Maine 5
Maryland 9
Massachusetts 7
Michigan 18
Minnesota 9
Mississippi 3
Missouri 13
Nebraska 3
Nevada 2
New Hampshire 2
New Jersey 10
New Mexico 1
New York 23
North Carolina 6
North Dakota 1
Ohio 16
Oklahoma 2
Oregon 4
Pennsylvania 22
South Carolina 4
South Dakota 3
Tennessee 7
Texas 15
Vermont 2
Virginia 13
Washington 17
West Virginia 1
Wisconsin 7
Wyoming 1
Puerto Rico 3
Unknown State 8
Total 425

 

Last updated: August 23, 2023

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  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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