ECD Patient Locations

The following lists represent the number of patients currently registered with the ECD Global Alliance; to date, there have been a total of 432 patients registered with the organization. We believe there are other patients in the world that are either not yet diagnosed or may not be aware of the ECDGA and therefore have not registered. We encourage all diagnosed ECD patients to register with the organization here at no cost.  For those searching for a diagnosis, please contact us. We are happy to help you connect with physicians who can aid in an ECD diagnosis.

Registered Location # Patients
Algeria 1
Argentina 2
Australia 14
Bahrain 1
Belgium 4
Brazil 10
Canada 12
Chile 1
China 7
Colombia 1
Cyprus 1
Denmark 1
Egypt 1
France 19
Germany 6
Greece 1
Hungary 1
India 3
Iran 1
Ireland 2
Israel 7
Italy 8
Japan 1
Kazakhstan 1
Korea 1
Lebanon 1
Libya 1
Mexico 1
Namibia 1
Nepal 1
Netherlands 4
New Zealand 2
Norway 3
Pakistan 2
Poland 1
Portugal 1
Romania 2
Saudi Arabia 1
Slovenia 1
South Africa 1
Spain 7
Sweden 2
Switzerland 1
Turkey 3
United Arab Emirates 1
United Kingdom 21
Uruguay 1
United States 190
Unknown Country 1
Total 357
Male 61%
Female 39%
Registered US State/Territory
Location
# Patients
Alabama 1
Arizona 3
Arkansas 1
California 24
Colorado 6
Connecticut 1
Delaware 1
DC 1
Florida 11
Georgia 2
Hawaii 2
Idaho 2
Illinois 5
Indiana 4
Iowa 2
Kentucky 3
Maine 1
Maryland 6
Massachusetts 5
Michigan 7
Minnesota 4
Mississippi 2
Missouri 7
Montana 1
Nebraska 1
Nevada 2
New Hampshire 1
New Jersey 4
New Mexico 1
New York 12
North Carolina 2
North Dakota 1
Ohio 6
Oklahoma 1
Oregon 1
Pennsylvania 8
South Carolina 2
South Dakota 2
Tennessee 2
Texas 14
Vermont 1
Virginia 8
Washington 7
West Virginia 2
Wisconsin 3
Puerto Rico 1
Unknown State 6
Total 190

Last updated: May 30, 2017

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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Copyright 2017. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization