Terms of Use

The information presented here is not intended to diagnose health problems or to take the place of professional medical care. The information contained herein is neither intended to dictate what constitutes reasonable, appropriate or best care for any given health issue, nor is it intended to be used as a substitute for the independent judgment of a physician for any given health issue. Please consult your health care provider for all your health problems. All visitors to this and other ‘Erdheim-Chester.org’ associated web sites agree to read and abide by the complete terms of this agreement.

Legal Disclaimers

Summary:

  • ‘The www.Erdheim-Chester.org’ web site does not constitute an attempt to practice medicine.
  • The use of the site does not establish a doctor-patient relationship.
  • Individuals should consult a qualified health care provider for medical advice and answers to personal health questions.
  • While the site attempts to be as accurate as possible, it should not be relied upon as being comprehensive or error-free.
  • The web site is under constant development and changes may be made in the articles and programs at any time.
  • The web site reserves the right to change its disclaimer or privacy policy, so users should review these periodically.

No medical advice.
The information posted on this website is not to be considered medical advice and is not intended to replace consultation with a qualified medical professional. As a group of ECD patients and their caregivers, our goal is to provide sufficient information so that those affected by ECD are able to become more knowledgeable about this rare disease and participants in their disease management plan. The primary responsibility of your disease management plan is with your treating physicians and you should only follow your treating physicians advice. DO NOT change/modify your disease management plan on your own without consulting your treating physicians.

No Warranties.
This web site is provided on an “as is,” “as available” basis without warranties of any kind, expressed or implied, including, but not limited to, those of TITLE, MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE or NON-INFRINGEMENT or any warranty as to accuracy, timeliness, completeness or arising from a course of dealing, usage, or trade practice. No oral advice or written information provided by the ‘www.erdheim-chester.org’ or its contributors/employees shall create a warranty; nor shall members or visitors to the site rely on any such information or advice.

Disclaimer of Liability.
The user assumes all responsibility and risk for the use of this web site. Under no circumstances shall ‘www.erdheim-chester.org’ or its contributors/employees or its volunteers or anyone else involved in creating or maintaining this web site be liable for any DIRECT, INDIRECT, INCIDENTAL, SPECIAL or CONSEQUENTIAL DAMAGES, or LOST PROFITS that result directly or indirectly from the use or inability to use the web site and/or any other web sites which are linked to this site – or that result directly or indirectly from mistakes, omissions, interruptions, deletion of files, viruses, errors, defects, or any failure of performance, communications failure, theft, destruction or unauthorized access.

Last updated: January 25, 2015

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  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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