Medical Professional Contacts

Medical Professionals with Erdheim-Chester Disease Knowledge/Experience

This section is provided to help patients and physicians find contact information about those medical professionals with some experience in diagnosing and/or treating Erdheim-Chester Disease (ECD).  If you are a medical professional and would like to see your contact information listed, or if you are a patient and would like us to contact your doctor for permission to include their information here, please inform our team.

The inclusion of a name and contact information here does not imply any type of endorsement of that medical professional.  Rather, this information is provided simply to help facilitate sharing of information and knowledge among patients and physicians.  Likewise, the exclusion of a name here also does not imply a lack of confidence in a particular physician or medical professional.  Rather, it simply means either the physician or medical professional has not been asked if their name can appear here or they have declined a request for permission to include their information.