After a day filled with knowledge, shared stories, and powerful conversations at the 2025 Patient & Family Gathering, the ECD Global Alliance invites all attendees to join us for a heartfelt and memorable Celebration Dinner—a time to pause, reflect, and honor the community that makes this journey more hopeful.
Held on the evening of May 26 at the beautiful Renaissance Barcelona Fira Hotel, this special gathering offers more than just a meal. It’s a chance to celebrate the strength and resilience of the global ECD community, forge deeper bonds, and take a moment to simply be together, no lectures, just real connection.
The Patient & Family Gathering is filled with moments of learning and discovery—but the Celebration Dinner is where hearts meet. This dinner is a time to recognize the courage it takes to live with or care for someone with Erdheim-Chester Disease. It’s a time to raise a glass to the researchers, caregivers, and patients who continue to move the field—and each other—forward.
You can expect a warm, welcoming atmosphere designed to nurture the emotional side of the ECD journey. Whether you’re attending for the first time or reconnecting with familiar faces, this dinner creates space for everyone to feel seen, appreciated, and supported.
The ECDGA Celebration Dinner is more than a social event—it’s a meaningful tradition that reinforces the very heart of the organization: community, compassion, and connection. As the day winds down, this evening brings lightness to a heavy topic and allows attendees to carry the day’s inspiration into lasting relationships.
Whether you’ve made new friends, found new insights, or simply want to share a quiet smile with someone who understands, you’ll find a seat at this table.
The ECD Global Alliance 2025 Patient & Family Gathering will take place on May 26 at the Bellvitge University Hospital. This event brings together patients, family members, carers, clinicians, researchers, and members of support organizations to share knowledge and experiences related to ECD diagnosis, treatment, and daily living. The Celebration Dinner will follow the day’s sessions, offering time to wind down, connect, and celebrate the power of unity.
We look forward to sharing this unforgettable evening with you. Learn more about the Barcelona Conference.
The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.