Make a Positive Difference – Volunteer!

Thank you for considering lending your skills to the work of the organization. The ECDGA members are a community of people that come together to overcome ECD and adult histiocytic disorders. Volunteers help make the day-to-day work possible! We hope you will want to become involved.

“You can say I have a very personal agenda towards [helping the ECDGA]. I see what the organization does for an orphan disease. Because of ECDGA, today I know what future treatment could be available for individuals like myself. I didn’t just want to be a patient in the books, but a contributor to the greater good of what ECDGA stands for.” – Mohammad Chowdhury, Patient, Board of Directors, Donor, Volunteer

Volunteer Roles Available