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There is so much progress yet to be made in researching treatments for Erdheim-Chester Disease (ECD) and all rare diseases. As an ultra-rare blood cancer that affects multiple organs, ECD remains widely underrecognized, and many patients face delays in diagnosis and limited treatment options.

That’s why we stand with the rare disease community in supporting #RareDiseaseDay on February 28. Awareness is critical—it leads to earlier diagnoses, increased research, and better treatments. Together, we can make a difference for the 300 million people worldwide living with a rare disease.

ECD is just one of more than 7,000 rare diseases, and like many others, it has no known cure. But thanks to growing awareness and advancements in research, progress is being made. The Erdheim-Chester Disease Global Alliance (ECDGA) has helped fund multiple research initiatives, and we continue to push for new discoveries that bring hope to patients and families. Your voice, your advocacy, and your support matter in the fight for better treatments and a brighter future.

Support #RareDiseaseDay, February 28.

Learn what you can do to help: http://bit.ly/rdd2025

Share Your Colours: https://www.rarediseaseday.org/#share-your-colours