Information was added to the home page explaining that tissue samples of ECD lesions/tumors are being requested. Studies being conducted at the National Institutes of Health (NIH) and Texas Children’s Hospital need these samples as part of their research into the cause and possible treatments of ECD. Any patient planning surgery at the site of an ECD lesion/tumor is asked to contact the organization (support@erdheim-chester.org), or the principal investigator of the NIH ECD Study or the Texas Children’s Hospital Histiocytosis Study.
A link was added to the list of previously published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. It is:
New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:
Information on the “How Can I Help?” page was updated to reflect the organization is now proud to have a staff member who is in charge of organizational development.
The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.
Chat summaries were added to the “Chat Room” page.