Update Information for Mar. 30, 2010 (V 2.3) An update was made to the ‘ECD Global Alliance’ page to show the organization has been granted a tax exempt status under section 501(c)(3) of the US Internal Revenue Code. This page was also updated to show the current number of patients represented by the organization. The […]
Update Information for Feb. 28, 2010 (V 2.2) Entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows: A Letter to the Editor published 2010 Jan 22 in “Rheumotology”. The letter is entitled, “Erdheim[1]Chester disease: report on a case and […]
Update Information for Jan. 27, 2010 (V 2.1) A logo was placed on the website to show the organization is a partner with the National Organization of Rare Diseases (NORD) to help raise awareness of rare diseases as a public health issue. New links were added to the published articles found on the “Technical Papers […]
Last updated: July 11, 2015
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