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2023 Fall Newsletter – Awareness Week and More
2023 Spring Newsletter-Family Gathering
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2019 Year-End Newsletter Final
Member or Donor News:
2019 Erdheim-Chester Event Highlights
Medical News:
2018 Year-End Newsletter
August/September Newsletter
June/July Newsletter
April/May Newsletter
February/March Newsletter
December/January Newsletter
Year-End Newsletter 2017
January/February Quarterly Newsletter
April/May Quarterly Newsletter
May/June Quarterly Newsletter
July/August Quarterly Newsletter
Special Edition Newsletter 2013
Year-End Newsletter – December 2012
Organizational Status – September 2011
Organizational Status – May 2011
Newsletter Special Edition – August, 2010
Newsletter Issue 4 – September, 2009
Newsletter Issue 3 – June, 2009
Newsletter Issue 2 – March, 2009
Newsletter Issue 2 – March, 2009
Last updated: September 11, 2023