Our Story

In April 2008, a few ECD caregivers, Carol, Kathy, and RuthAnn found each other via the internet. With a spirit of “If you build it, they will come,” an online chat session was scheduled for all those affected by ECD. What started with a group representing only six patients, now serves over 600 families worldwide.

Kathleen Brewer, President, and Co-founder of ECD Global Alliance is a woman filled with love, kindness, and compassion.

Kathy Brewer, ECDGA President

Kathy is a driven individual who was able to turn heartache into triumph. December 5, 1998, Kathy married the love of her life, Gary. Prior to their marriage, in the 1980s, Gary was a superintendent of Beauregard Parish Schools in Louisiana when he began having issues with his kidneys and high blood pressure. Doctors believed his issues were a direct result of his high-stress job. For nearly 20 years, Gary faced his progressing medical issues with no reprieve.

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Last updated: July 23, 2021

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