Connect with the community and other ECD caregivers

Join monthly Chat Sessions or sign up here to receive more information to support you in your role as a caregiver.

Connect with the community and other ECD caregivers!

The ECD Global Alliance is an advocacy organization comprised of a strong community dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease. The community only gets stronger with the help of patients and their biggest supporters! 

Why do I need to register if the person I care for is already signed up?

• We want to be able to provide resources that can be helpful for your specific journey.
• You will receive invitations and details about upcoming events most related to your role.
• You will be helping the ECDGA more easily connect caregivers with one another, inspiring more programs that may be interesting to you.

Here is a link to sign-up form for caregivers or family members wanting to stay connected to the advocacy group supporting their loved one battling ECD.  

Signup