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Please join us! The ECD Patient and Family Gathering (PFG) unites patients and family members while increasing knowledge and understanding of Erdheim-Chester disease.

The PFG provides attendees with a place to meet and an opportunity to direct questions and concerns to an international group of medical professionals who have experience in caring for ECD patients and who are doing research in the field. The information that is shared can help lead a patient to quickly learn more about ECD and possible treatment options, as well as hear about the latest research findings.

Register today for early bird pricing: https://secure.qgiv.com/for/bpfg/event/barcelonapatientfamilygathering/

ECD Patient & Family Gathering
Conference Date: 26 May 2025
Conference Location: Barcelona, Spain

Please register now to help us plan for maximum simultaneous interpreter support. Presentations provided in English, will be translated by human interpreters in real-time to allow participation from those who speak Spanish, French, German and Italian. If no one has registered who speaks one of these languages by March 1 we will be unable to provide translation in that language.

By registering before 28 February you will help plan interpretation for those languages most needed.

Learn More: https://www.erdheim-chester.org/ecd-patient-family-gathering/

Instructions for non-English Speakers: https://www.erdheim-chester.org/translation-instructions-to-register-for-the-ecd-conference-in-barcelona-on-26-may-2025/

Nominate Your ECD Champion: https://ecdga.questionpro.com/2025-ECDGA-Award-Nomination

Contact us with your questions: support@erdheim-chester.org