What’s new in the ECD community?

ECDGA Blog

See a brief overview of what the ECDGA has been up to recently!  The blog page provides highlights and up-to-date news.  Find out about grant awards and deadlines, patient events, new trials, fundraising news, etc.  

Newsletters

Find a list of ECDGA newsletters here.  There are quarterly and annual newsletters for review and information about the accomplishments and successes of volunteers and medical teams.

Press Releases

These articles are created by the ECDGA to help media outlets publish stories about the community easily with factual data about our initiatives.  Community members are encouraged to share these with their local paper or news channels to raise awareness and educate others about this rare disease.

• Blog Announcements

  What is happening in the ECD Community?

• Newsletters

  What are the ECDGA Highlights?

• Press Releases

  What's at the newstation?