Update Information for July 31, 2011
(V 2.19)
An annoucement about a matching donation opportunitywas place on the "Main" page.
All donations, up to $50,000, made between July 23, 2011 and January 1, 2012,
will be matched thanks to a generous private donation. If you donate $10, the
organization will receive $20, thanks to your donation and the matching
donation. What a great way to maximize your help! Please mail checks to
ECD Global Alliance
P.O. Box 775
DeRidder, LA 70634
The Case Locations as found on the "Patient-to-Patient" page, was updated.
The Case Log as found on the "Patient-to-Patient" and "ECD Global Alliance" page, was updated and corrections made to the diagnosis date for some of the first patients to register with our organization. (For anyone wishing to add or update their information, please email the information to support@erdheim-chester.org.
A job opening announcement for an ECD Global Alliance Development Director was placed on the "Main" page.
A "How To Guide" for hosting a fun run fundraiser was placed on the "Resources" page.
New links weree added to the list of previously published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. They are:
Murakami Y, Wataya-Kaneda M, Terao M,
Azukizawa H, Murota H, Nakata Y, Katayama I.
Peculiar distribution of tumorous xanthomas in an adult case of
erdheim-chester disease complicated by atopic dermatitis
Case Rep Dermatol. 2011 May;3(2):107-12. Epub 2011 May 17.
Pan A, Doyle T, Schlup M, Lubcke R,
Schultz M.
Unusual Manifestation of Erdheim-Chester Disease
BMC Gastroenterol. 2011 Jun 22;11(1):77
Kevin Andrysek
Erdheim-Chester Disease - A Case Study and Literature Review
DIMENS CRIT CARE NURS. 2011;30(4):184/189
Aurélie Drier, Julien Haroche, Julien
Savatovsky, Gaelle Godenèche, Didier Dormont, Jacques Chiras, Zahir Amoura,
Fabrice Bonneville
Cerebral,
Facial, and Orbital Involvement in Erdheim-Chester Disease: CT and MR
Imaging Findings
Radiology.
2010 May;255(2):586-94
Botelho A, Antunes A, Almeida JC,
Abecasis M, de Gouveia RH, Martins AP, Marques AM.
A rare
histiocytosis with severe cardiac involvement: Erdheim-Chester disease
Rev Port Cardiol. 2008
May;27(5):727-40
New entries
weree made to the “Abstracts
of Published Papers” as listed under the “Technical
Papers” selection for recently published papers.
The additions are as follows:
Chat summaries were added to the “Chat Room” page.
Spelling edits were made to the "Update Information for June 30, 2011" page.
Formatting edits were made to the "Links" page.
Formatting edits were made to the "Grants" page.
A caregiver blog link was removed from the "Blogs and eGroups" page and the "Caregiver Info" page as the blog has been deleted from the internet by its author.
Last updated: July 29, 2011