rare connect
On May 26, 2025, the Erdheim-Chester Disease Global Alliance (ECDGA) will welcome patients, families, clinicians, and researchers from around the world to its Annual Patient & Family Gathering in Barcelona, Spain. While this event is known for its spirit of community and empowerment, what makes this year even more special is the leadership and hospitality of our local host: Dr. Xavier Solanich and the dedicated team from the Bellvitge University Hospital ECD Care Center.
This is your chance to meet the people who are not only helping to organize the event but are also deeply involved in the day-to-day care and research that supports those living with Erdheim-Chester Disease.
A Leader in ECD Care
Dr. Xavier Solanich is a respected clinician and researcher at Bellvitge University Hospital, one of Spain’s premier academic medical centers. As a specialist in rare hematological disorders, including Erdheim-Chester Disease, Dr. Solanich is no stranger to the challenges patients and families face when navigating a rare diagnosis.
His commitment to improving care for ECD patients is evident not only in the clinic but also in the broader research community. Under his leadership, Bellvitge Hospital has been recognized as an ECD Care Center, serving patients across Spain and Southern Europe with an expert, multidisciplinary approach. The center combines cutting-edge diagnostics with compassionate, personalized care.
By hosting this year’s Gathering, Dr. Solanich and his team are extending their reach beyond the hospital walls—opening their hearts and knowledge to the global ECD community.
Why Bellvitge Matters
Located just outside central Barcelona, Bellvitge University Hospital is a key part of the Catalan public health system and a leader in treating complex and rare diseases. The hospital’s ECD team collaborates with specialists in radiology, neurology, oncology, endocrinology, and genetics to offer truly integrated care.
For many patients, being seen at a center like Bellvitge means receiving care from professionals who understand ECD’s complexities—not just from a medical perspective, but from a human one. Their participation in global research networks and connection to other ECD Care Centers ensures patients benefit from the latest science and discoveries.
A Warm Welcome to Barcelona
Dr. Solanich and his team are not just medical professionals—they are hosts. As the local face of the 2025 Patient & Family Gathering, they are committed to making every attendee feel welcome, comfortable, and heard.
At the Gathering, you’ll have the opportunity to hear from Dr. Solanich directly during sessions focused on diagnosis, care strategies, and living with ECD. His team will also be available throughout the day to connect with patients and families one-on-one, helping answer questions and building the kind of relationships that last long after the event ends.
Barcelona, with its vibrant culture, breathtaking architecture, and warm Mediterranean energy, offers the perfect backdrop for a day centered on hope, learning, and connection. Dr. Solanich and the Bellvitge team are honored to welcome you to their city—and to stand beside you in the fight against ECD.
Why Familiar Faces Matter
For many, attending a conference in a different country can be intimidating. That’s why it’s so important to introduce the people who will be at the heart of the event. Knowing who’s waiting for you with open arms—who’s already working on your behalf—makes the experience feel less like travel and more like coming home.
The ECDGA has always believed that community drives progress. That’s why we are proud to partner with passionate medical leaders like Dr. Solanich and his team at Bellvitge. Together, we’re not just organizing a conference. We’re building a bridge—connecting patients to experts, stories to science, and individuals to a global support network that grows stronger each year.
Join Us on May 26
This May in Barcelona, you’ll not only hear about the latest developments in ECD diagnosis and care—you’ll experience what it feels like to be truly seen, supported, and surrounded by people who care.
We invite you to come with your questions, your hopes, and your stories—and to leave with new knowledge, friendships, and strength.
The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.
