At the 10th Annual ECD Conference in Barcelona, something truly unique happens—patients, families, and medical experts come together in the same room, with a shared purpose: driving progress in the understanding, care, and treatment of Erdheim-Chester Disease (ECD). This is the only event dedicated to creating a direct connection between those living with ECD and the healthcare professionals working to improve outcomes.

When patients and doctors collaborate, lives change. Open conversations during this conference foster a deeper understanding of what it’s like to live with ECD, while allowing patients to hear firsthand from world-renowned experts about the latest advancements in research, diagnostics, and care strategies. For many, it’s an empowering experience—one that bridges the gap between clinical science and personal journeys.

The conference includes two vital events:

• The Patient and Family Gathering, where individuals and families affected by ECD gain knowledge, ask questions, and find community support.
• The Medical Symposium, where healthcare providers from around the world share their expertise, case studies, and the latest scientific discoveries in ECD.

By coming together, we are shaping the future of ECD care—building relationships, exchanging knowledge, and inspiring hope.

Patients & Families, Register Here: Patient and Family Gathering
Medical Professionals, Register Here: Medical Symposium

We look forward to seeing you in Barcelona as we unite for change, connection, and a brighter future for all impacted by Erdheim-Chester Disease.