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Come join us on May 26 in Barcelona, Spain to learn the latest about ECD treatments and meet others who are also living with this disease. Patients, family members, friends, and medical professionals will come together for a day of sharing, learning and fellowship. This is a once in a year opportunity. Don’t miss it.

Please register now to help us plan for maximum simultaneous interpreter support. Presentations provided in English, will be translated by human interpreters in real-time to allow participation from those who speak Spanish, French, German and Italian. By registering before 28 February you will help plan interpretation for those languages most needed. If no one has registered who speaks one of these languages by March 1 we will be unable to provide translation in that language.

Register today for early bird pricing: https://secure.qgiv.com/for/bpfg/event/barcelonapatientfamilygathering/

Contact us with your questions: support@erdheim-chester.org

ECD Patient & Family Gathering
Conference Date: 26 May 2025
Conference Location: Barcelona, Spain

Learn More: https://www.erdheim-chester.org/ecd-patient-family-gathering/

Instructions for non-English Speakers: https://www.erdheim-chester.org/translation-instructions-to-register-for-the-ecd-conference-in-barcelona-on-26-may-2025/

Nominate Your ECD Champion: https://ecdga.questionpro.com/2025-ECDGA-Award-Nomination