rare connect
A new year of hope is on the horizon for the ECD community!
View the 2021 Year-End Newsletter.
The ECD Global Alliance is reaching new levels of support for those fighting Erdheim-Chester Disease with a matching gift campaign through December 31, 2021! Thanks to an $80,000 matching gift from a group of generous ECDGA Board members and benefactors –your impact on our critical work will go TWICE as far.
With your donation, we can make the future brighter for all who have been affected by ECD. Please make a gift today to strengthen our work in the year ahead…and know you will do twice the good! Double Your Gift Today!
What your gift provides:
- Research – Funding research on Erdheim-Chester Disease is at the forefront of our mission. The 2021 ECD Research Grant Award will be announced soon!
- Education – Physician education is accomplished with international conferences, online webinars, medical specialty outreach, and more.
- Support – Being able to provide patients and their families with the tools and connections they need to advocate for themselves is invaluable. Your donations don’t just help our rare community thrive. Your gifts also provide research funding that feeds into cancer findings across science.
Noah is ready for the holidays! Read his ECD story inside the newsletter.
Connect in 2022
Over the last two years, the ECD Global Alliance adjusted to the new norms of distancing and travel bans with more online connections. The Annual Patient & Family Gathering was put on hold during this time, making the July 2019 event the last time our ECD family was able to join face-to-face. We will continue to press forward with online connections for those that still cannot travel, but will also be offering a live meeting April 7-8, 2022! Find out more about this event here.
As we reflect on the trials and triumphs of our community members, we want to thank the supporters that come through for those fighting every single day. Your support is not just about your loved one, but about the future for all families faced with Erdheim-Chester Disease. Your provisions have come in all forms, and we appreciate everything you do!
Read about more updates in our Year-End Newsletter!
