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10th Annual ECD Medical Conference

The ECD Global Alliance is excited to convene the 10th annual Medical Conference in Barcelona, Spain. The conference will be hosted in partnership with Bellvitge Unversitari Hospital on 26 – 28 May 2025. The ECD Medical Symposium will be held on 27 May 2025. All medical professionals are welcome! Registration opening soon.

General News

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10th Annual ECD Patient & Family Gathering

The ECD Global Alliance is excited to convene the 10th annual Patient & Family Gathering in Barcelona, Spain. The meeting will be hosted in partnership with Bellvitge Unversitari Hospital on 26 May 2025. All patients, family members, friends, and medical professionals are welcome! Registration opening soon.

General News

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ECD Virtual Run, Walk, or Roll

Represent your country, your state, or your fight in our Virtual Run/Walk/Roll! By wheelchair, bike, or other means, come join us in this virtual event held during ECD Awareness Month (September 9-30). Register today as a part of a team or as an individual. We’ll see you there! Register Today Order an Event T-Shirt  

ECDGA News

Last updated: September 5, 2024

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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