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2021 Rare Disease Day

WHAT IS RARE DISEASE DAY? February 28, 2021, will be the 14th International Rare Disease Day coordinated by EURORDIS. On and around this day, hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities.   Approximately 300 million people (about 5% of the population) suffer from a rare disease. Within […]

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A New Year, a New Care Center for Erdheim-Chester Patients in the Netherlands

Erasmus University Medical Center in Rotterdam joins the ECD Referral Care Center network of hospitals skilled in treating Erdheim-Chester disease patients. The Erdheim-Chester Disease (ECD) Global Alliance welcomes Erasmus University Medical Center in Rotterdam, Netherlands into its Referral Care Center Network to help Erdheim-Chester disease patients. Leading this ECD-knowledgeable team is Dr. Jan Am van […]

General News

Last updated: February 17, 2021

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