Erdheim-Chester Disease Awareness Week

September 13 – 18, 2021

#SharingIsKey #ECDawareness #AwarenessWeek

 

The ECD Global Alliance is hosting its 7th Annual Erdheim-Chester Disease Awareness Week! Join our community in raising awareness of the ultra-rare ECD now through September 18, 2021.  

Please consider helping our team share information about Erdheim-Chester Disease with others. The voice of our supporters is essential to reducing the time it takes to find a diagnosis for this rare disorder.

 

Sharing is Key!

Share our media posts and your own awareness efforts on your media pages with hashtags for more exposure!
#ErdheimChester  #SharingIsKey  #AwarenessWeek  #ECDawareness  #Histio  #endECD

Tag us so we see your posts!

Facebook: @ErdheimChesterDisease

Instagram: @erdheim_chester

Twitter: @ECDGA

Wear your ECD gear or ribbon and send us a photo. Consider adding a quote on why awareness is important to you and your family.  These images and quotes will be placed on the above media pages for more exposure.

Go the extra mile!

Post or print this ECD Awareness Flyer and provide it to your family, friends, and medical teams.  Awareness Flyer

Share this educational webinar recording with colleagues working with histiocytic disorders.  Webinar Recording

Suggest the use of our informational brochures at your medical center.  Brochure Request

Invite your medical team to sign up with the ECD Global Alliance so they can stay informed.  Join Form

 

New Patient Story!

Time is of the Essence

 

Learn from the experts in this podcast!

Our President and Co-Founder, Kathy Brewer, joined Dr. Gaurav Goyal, the Histiocytosis Association, and the Histiocytosis Association of Canada in a podcast on creating awareness! The panel shares their powerful experiences with rare diseases, proving the importance of awareness.  Listen Now

As always, thank you for helping us to raise awareness of Erdheim-Chester Disease. Our community appreciates your efforts greatly!

With gratitude,

ECD Global Alliance Executive Director
Jessica Corkran