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Annual International Medical Symposium
May 26-28, 2025 | Barcelona, Spain
Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new findings related to the science of ECD, the diagnostic details, and the care of those living with ECD. This is the only meeting where medical specialists from different fields join together to discuss ECD. We look forward to you joining in the discussions and hope you might find opportunities for collaboration.
Abstract Submissions
Please submit your abstract(s) related to ECD and/or adult histiocytosis for presentation at the Medical Symposium before February 24, 2025. Abstract submissions are accepted for oral and/or poster presentation. This is a great opportunity to share your work and the work of your colleagues. Please let them know of the opportunity.
Schedule of Events
Monday, May 26, 2025 – Patient & Family Gathering.
8:00 am-8:30 am Registration & Continental Breakfast
Enjoy a light breakfast with others and prepare for an informational and hopeful day.
8:30 am-4:30 pm Patient & Family Gathering
Spend the day learning more about ECD from medical professionals, patients, and others.
6:00 pm-8:00 pm Celebration Evening
Spend time with patients, family members, friends, and medical professionals in an evening of hope and celebration.
Tuesday, May 27, 2025 – Medical Symposium.
8:00 am-8:30 am Registration & Continental Breakfast
Enjoy a light breakfast with colleagues and prepare for an informational day.
8:30 am-4:30 pm Medical Symposium
Spend the day learning more about ECD from other investigators and clinicians. Discover possible future collaboration opportunities.
6:30-8:30 pm Medical Reception
Spend time relaxing and meeting with friends.
Wednesday, May 28, 2025 – Care Center Meeting.
8:00 am-11:00 am Care Center Meeting
Discuss patient care and opportunities to work together to improve patient outcomes.
Who attends?
The event is open to the entire ECD community of medical professionals. Please feel free to invite your colleagues.
Host
Xavier Solanich, MD, PhD is this year’s host of the ECD Meeting. Dr. Solanich is a medical specialist in internal medicine at the University Hospital of Bellvitge where he has practiced since August 2010. He leads the ECD Referral Care Center at Bellvitge and in addition to ECD patients, he attends to patients with other rare diseases such as Rosai-Dorfman, primary immunodeficiencies, and some hereditary metabolic diseases (especially Gaucher). He sees patients with systemic autoimmune diseases, mainly systemic vasculitis, periaortitis / retroperitoneal fibrosis, and IgG4-related diseases. He is also a consultant to the ophthalmology service for diagnosis and management of patients with uveitis, immune / ischemic optic neuritis, and orbital pseudotumor…
Dr. Solanich also works in the Systemic Diseases and Aging group at the Bellvitge Biomedical Research Institute (IDIBELL). He has participated in multiple national and international research projects to study systemic autoimmune diseases, immunodeficiencies, and other rare diseases. He has also participated in several clinical trials as principal investigator or collaborator, obtaining competitive public funding. As a result of his research, he is the author of several articles published in indexed scientific journals.
Agenda
A detailed agenda will be available before the conference.
Hotel
A room block has been set up for the Patient & Family Gathering at –
The Renaissance Barcelona Fira Hotel
Plaza Europa, 50-52, L’Hospitalet de Llobregat,
Barcelona, Spain, 08902
Please make your reservations using the link below before the hotel deadline.
Book your group rate for ECD Global Alliance Conference
Group Room Rate: Single: 240 Euro/night; Double: 260 Euro/night
Hotel reservation deadline: April 21, 2025
Travel
Barcelona is served by the Josep Tarradellas Barcelona-El Prat Airport. Transportation options between the airport and the hotel include:
- Subway. Metro line L9 Sud connects the airport terminals T1 and T2 with the Renaissance Barcelona Fira Hotel. The hotel metro station is Europa Fira. The metro operates daily between 5 am and midnight.
- Private Transfer. The hotel website states that private transfer is available for 101 Euro (one way) on request.
Scholarship Help
We have a limited number of scholarships available if a patient/family member would be unable to attend due to financial reasons. If a scholarship is needed, please contact the ECDGA at support@Erdheim-Chester.org as early as possible. You will need to include your name, email address, position in the community (patient, caregiver, family member), and a statement of your need. We will let everyone know what help we can provide by the end of February.
Awareness Nomination Opportunity
You are encouraged to nominate leaders in the ECD community – https://ecdga.questionpro.com/2025-ECDGA-Award-Nomination. Submit a Mark Heaney Award nomination to honor the medical professional you believe has improved the lives of ECD patients by bringing awareness to ECD within the medical profession. Nominate anyone (patient, caregiver, medical professional, friend, etc.)who has volunteered their time to help improve the lives of all of those impacted by ECD. The award recipient will be announced at the ECD Celebration Evening on May 26.
Attendee Experiences
| “ECDGA is doing a phenomenal job. Thank you team ECDGA for all that you do to improve patient care.”
– Radiologist |
“It is my first ECDGA meeting and I really enjoyed it.”
– Basic Scientist |
“This is the first time to attend an ECD meeting. This is a very amazing event which will definitely change my practice and attitude.”
– Hematologist |
