Registration is now open! The 2017 Patient & Family Gathering will be located in New York City on October 27, 2017. Join knowledgeable physicians and other ECD affected families from around the world for this annual gathering.
Abstracts of Published Papers
Medical Journal Articles
Discussion Regarding ECD with Dr. Julien Haroche Sept. 17, 2008
Discussion Regarding ECD with Dr. Razelle Kurzrock July 16, 2008
Last updated: December 3, 2015