This list represents the number of patients who have registered with the ECD Global Alliance. We believe there are other patients in the world that are either undiagnosed or may not be aware of the ECDGA and therefore have not registered. We encourage all diagnosed ECD patients to register with the organization here. For those searching for a diagnosis, please contact us. We are happy to help you connect with physicians who can aid in an ECD diagnosis.
Registered Location | # Patients |
Algeria | 1 |
Argentina | 2 |
Australia | 13 |
Bahrain | 1 |
Belgium | 3 |
Brazil | 8 |
Canada | 8 |
China | 6 |
Colombia | 1 |
Cyprus | 1 |
Denmark | 1 |
Egypt | 1 |
France | 12 |
Germany | 5 |
Greece | 1 |
Hungary | 1 |
India | 2 |
Iran | 1 |
Ireland | 2 |
Israel | 6 |
Italy | 8 |
Japan | 1 |
Korea | 1 |
Lebanon | 1 |
Libya | 1 |
Mexico | 1 |
Namibia | 1 |
Nepal | 1 |
Netherlands | 1 |
New Zealand | 2 |
Norway | 3 |
Pakistan | 1 |
Poland | 1 |
Portugal | 1 |
Romania | 2 |
Saudi Arabia | 1 |
Slovenia | 1 |
South Africa | 1 |
Spain | 6 |
Sweden | 2 |
Switzerland | 1 |
Turkey | 3 |
United Arab Emirates | 1 |
United Kingdom | 21 |
Uruguay | 1 |
United States | 170 |
Unknown Country | 1 |
Total | 312 |
Registered US State/Territory Location |
# Patients |
Alabama | 1 |
Arizona | 3 |
Arkansas | 1 |
California | 18 |
Colorado | 5 |
Connecticut | 1 |
Delaware | 1 |
DC | 1 |
Florida | 9 |
Georgia | 2 |
Hawaii | 2 |
Idaho | 2 |
Illinois | 4 |
Indiana | 3 |
Iowa | 2 |
Kentucky | 2 |
Maine | 1 |
Maryland | 5 |
Massachusetts | 5 |
Michigan | 6 |
Minnesota | 3 |
Mississippi | 2 |
Missouri | 8 |
Montana | 1 |
Nevada | 2 |
New Hampshire | 1 |
New Jersey | 3 |
New Mexico | 1 |
New York | 12 |
North Carolina | 2 |
North Dakota | 1 |
Ohio | 6 |
Oklahoma | 1 |
Oregon | 1 |
Pennsylvania | 8 |
South Carolina | 2 |
South Dakota | 2 |
Tennessee | 2 |
Texas | 13 |
Virginia | 7 |
Washington | 6 |
West Virginia | 2 |
Wisconsin | 3 |
Puerto Rico | 1 |
Unknown State | 6 |
Total | 170 |
# Males: 60.5%
# Females: 38%
Unknown gender: 1.5%
Last updated: November 8, 2016