ECD Patient Locations

This list represents the number of patients who have registered with the ECD Global Alliance. We believe there are other patients in the world that are either undiagnosed or may not be aware of the ECDGA and therefore have not registered. We encourage all diagnosed ECD patients to register with the organization here. For those searching for a diagnosis, please contact us. We are happy to help you connect with physicians who can aid in an ECD diagnosis.

Registered Location # Patients
Algeria 1
Argentina 2
Australia 13
Bahrain 1
Belgium 3
Brazil 8
Canada 8
China 6
Colombia 1
Cyprus 1
Denmark 1
Egypt 1
France 12
Germany 5
Greece 1
Hungary 1
India 2
Iran 1
Ireland 2
Israel 6
Italy 8
Japan 1
Korea 1
Lebanon 1
Libya 1
Mexico 1
Namibia 1
Nepal 1
Netherlands 1
New Zealand 2
Norway 3
Pakistan 1
Poland 1
Portugal 1
Romania 2
Saudi Arabia 1
Slovenia 1
South Africa 1
Spain 6
Sweden 2
Switzerland 1
Turkey 3
United Arab Emirates 1
United Kingdom 21
Uruguay 1
United States 170
Unknown Country 1
Total 312
Registered US State/Territory
Location
# Patients
Alabama 1
Arizona 3
Arkansas 1
California 18
Colorado 5
Connecticut 1
Delaware 1
DC 1
Florida 9
Georgia 2
Hawaii 2
Idaho 2
Illinois 4
Indiana 3
Iowa 2
Kentucky 2
Maine 1
Maryland 5
Massachusetts 5
Michigan 6
Minnesota 3
Mississippi 2
Missouri 8
Montana 1
Nevada 2
New Hampshire 1
New Jersey 3
New Mexico 1
New York 12
North Carolina 2
North Dakota 1
Ohio 6
Oklahoma 1
Oregon 1
Pennsylvania 8
South Carolina 2
South Dakota 2
Tennessee 2
Texas 13
Virginia 7
Washington 6
West Virginia 2
Wisconsin 3
Puerto Rico 1
Unknown State 6
Total 170

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

# Males: 60.5%
# Females: 38%
Unknown gender: 1.5%

Last updated: November 8, 2016

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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