What’s New?

The September 10, 2015 website update includes the following changes and additions.  Thank you for visiting the ECDGA webpage!

New Announcements were added.

Chat Sessions have been added from years 2014 and 2015.

The Press Releases page was added.

The Knowledgeable Doctors page was updated to include the following physicians.

Under Hematology:

Paul Hendrie MD PhD
Medical Director, Inpatient Oncology Service
Seattle Cancer Care Alliance
University of Washington
Telephone:  206-288-6366

Under Oncology:

Fadi Braiteh, MD
Medical Oncology Director, Phase I Translational Oncology Program (TOP) and GI Malignancies
USON Research Network
Comprehensive Cancer Centers of Nevada
3730 S Eastern Avenue
Las Vegas, Nevada 89169  USA
Telephone:  702-952-3400
Fax:  702-952-3723
email:  fadi.braiteh@usoncology.com

On the Studies and Trials page the following studies were added.

Under Clinical Trials for ECD Treatment:
A Study of Lenalidomide for Adult Histiocyte Disorders

Under ECD Treatment Monitoring Studies:
Observational Multi-center Study on Erdheim-Chester Disease treated with Anakinra

New Videos were added for 2015.

A new Resources page was added and provides printable Awareness materials.

Updated Grant Process documents include:  Letters of Intent; LOI Review Process; Grant Application Process

Updates have been made to the Medical and Patient Brochures.

New entries were made to the Abstracts of published papers document.

The Treatments page includes an update under the section BRAF-inhibitors (vemurafenib, dabrafenib).

Medical journal articles have been added for 2015.

Member Locations have increased with membership.

Staff and Board information has been updated.

The organization’s Accomplishments have been updated with a new timeline.

Printed Stories have been added.

Information on joining the organization has been added on the Join page.

A Volunteer form was added.

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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