Update Information for October 7, 2012 (V 2.33)

The ECD Global Alliance has a matching pledge donation.  For every dollar raised by the organization between June 1, 2012 and December 31, 2012, an additional dollar will be donated to the organization by a generous private donor.  PLEASE, donate today if you want to help researchers find better and more effective treatment options for ECD.  You can donate online at www.razoo.com/story/ECD-Global-Alliance.  Of, if you prefer, you can mail a donation to:
ECD Global Alliance
P.O. Box 775
DeRidder, LA  70634
Checks can be made payable to ECD Global Alliance.  This information was highlighted on the “Main” page.  No donation is too small or too big!  Thank you for whatever help you can provide.

Links were added to the list of previously published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. They  are:

Liotta EM, Jhaveri MD, Fox JC, Venugopal P, Lewis SL.
ErdheimChester Disease
Arch Neurol. 2012 Aug 27:1-2.

Asher I, Rabinovith I, Katz M, Sthoeger Z.
Erdhiem-Chester Disease in a 49 Year Old Man
Isr Med Assoc J. 2012 Jun;14(6):401

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:

  1. An article published in Isr Med Assoc J.  The article is entitled, “Erdhiem-Chester disease in a 49 year old man” and does not include an abstract.
  2. An article published in Arch Neurol.  The article is entitled, “Erdheim-Chester Disease ” and does not include an abstract.
  3. An article published in Pract Neurol.  The article is entitled, “Histiocytosis for the neurologist: a case of Erdheim-Chester disease.” and includes an abstract.
  4. An article published in Clin Neurol Neurosurg.  The article is entitled, “Paroxysmal exertion-induced dystonia secondary to Erdheim-Chester disease” and does not include an abstract.

The “Grants” page was updated to show that the organization expects to fund an ECD-related research grant in the first half of 2013.  It is hoped that  a Request for Proposals will be extended in, or around, November 2012.  If you are interest in applying for an ECD-related research grant, please email support@erdheim-chester.org.

The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.

Chat summaries were added to the “Chat Room” page.

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

Featured Partners

Copyright 2024. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization. EIN# 27-0759192. | Privacy Policy