Update Information for October 31, 2010 (V 2.10)

The Patient Log as found on the “Patient-to-Patient” page was updated.

The “How Can I Help?” page was updated with information about ECD Global Alliance furndraisers that are taking place.

An update was made to the Home page to provide a link to the www.razoo.com/story/ECD-Global-Alliance website where online donations to the organization may be made.

Templates for business cards that can be used to help raise awareness of ECD were included on the “Resources” page.

Updated presentatons on Rare Diseases and ECD were added to the  “Resources” page.

Updates were made to the physician contact information as found on the  “Physicians” page.

Corrections were made to broken links on the “What is ECD?” page.

New links were added to the list of published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. They are:

Laurent Arnaud, Zoulikha Malek, Frédérique Archambaud, Aurélie Kas, Dan Toledano, Aurélie Drier, Delphine Zeitoun, Philippe Cluzel, Philippe A. Grenier, Jacques Chiras, Jean-Charles Piette, Zahir Amoura, Julien Haroche
18F-fluorodeoxyglucose–positron emission tomography scanning is more useful in followup than in the initial assessment of patients with Erdheim-Chester disease
Arthritis Rheum. 2009 Oct;60(10):3128-38.

Venkatanarasimha N, Garrido MC, Puckett M, White P.
A rare multisystem disease with distinctive radiologic-pathologic findings
AJR Am J Roentgenol. 2009 Sep;193(3 Suppl):S49-52. AJR teaching file: .

Haroche J, Cluzel P, Toledano D, Montalescot G, Touitou D, Grenier PA, Piette JC, Amoura Z
Images in cardiovascular medicine. Cardiac involvement in Erdheim-Chester disease: magnetic resonance and computed tomographic scan imaging in a monocentric series of 37 patients..
Circulation. 2009 Jun 30;119(25):e597-8

Entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:
1.  An article published in the Journal of Clinical Neuroscience.  The article is entitled, “Surgical treatment of intracranial Erdheim-Chester disease” and includes an abstract.

Chat summaries were added to the “Chat Room” page.