What’s New?

The November 2016 website update includes the following changes and additions.  Thank you for visiting the ECDGA webpage!

• Updates have been added to on the events page to provide information about the recent Patient and Family Gathering and ECD Medical Symposium.

• The following report was added to the list of full length articles:
  • Unusual presentation of Erdheim-Chester disease in a child with acute lymphoblastic leukemia

• One new ECD Studies & Trials has been added:
  • An Open Label Phase 2 Multicohort Trial of Nivolumab in Advanced or Metastatic Malignancies

• New chat session summaries have been added for 2016.

• New members have been added to the Member Locations page.

• A new press release was added: DeRidder Non-Profit in Paris During ECD Awareness Week.

• Check out a new article in Printed Stories:  N.B. woman calling on government to cover cost of life-saving drug

• Announcements include the updates on the recent #ECDAwareness week, the 2016 ECD events and an announcement about the upcoming, international Giving Tuesday.

• A new blog written by an ECD patient has been added: www.joseflacy.wordpress.com.