What’s New?

The May 2017 website update includes the following changes and additions.  Thank you for visiting the ECDGA webpage!

• A new press release has been added: NIH Researchers Educate Doctors About ECD in New Orleans.

• The following article was added to the list of Full Length Articles: DIAGNOSIS OF ENDOCRINE DISEASE: Expanding the cause of hypopituitarism

• New chat session summaries have been added for 2017.

• A new investigative study titled A Clinical, Structural, and Functional Neuroimaging Study of Cognition in Erdheim-Chester Disease, was added to the Studies & Trials.

• New members have been added to the Member Locations page.

• Check out a new story featuring the recent National Volunteer Week here.

• The new #ECDAwareness Week page has been added to help members get involved this September.

• A new timeline has been added to the Accomplishments page to highlight the growth of the community since 2008.

• Resources have been updated and new versions of awareness documents were added.