Update Information for March 31, 2011 (V 2.15)

A link to a radio interview of two ECD patients was provided on the “Patient-to-Patient” page.

New links were added to the list of published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page. They are:

Carl E. Allen, and Kenneth L. McClain
Erdheim-Chester: beyond the lesion
Blood, 2011 Mar 10;117(10):2745-6

Mileto A, Di Bella G, Gaeta M.
Cardiac magnetic resonance characterization of atrial pseudo-mass in Erdheim-Chester disease
Eur Heart J. 2009 Dec;30(24):3063.

An Entry was made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The addition is as follows:

  1. An article published in the journal, Blood.  The article is entitled, “Erdheim-Chester: beyond the lesion” and includes an abstract.
  2. An article published in the American Journal of Dermatopathology.  The article is entitled, “Erdheim-Chester Disease: A Histiocytic Disorder More Than Skin Deep” and includes an abstract.

The “How Can I Help?” page was modified to provide an update on the March 19 Fun Run fundraiser held in memory of F. Gary Brewer.  Over 150 people participated and a fun time was had.

The Case Locations as found on the “Patient-to-Patient” page, was updated.

Chat summaries were added to the “Chat Room” page.

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    DeRidder, LA 70634 USA

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