Update Information for January 31, 2013(V 2.37)

The “Home” page was updated to encourage medical professionals to hold October 31, 2013 open to attend the first International ECD Medical Symposium to be held in San Diego, California.  Patients and family members are encouraged to hold November 1-2, 2013 open to attend the first ECD Patient and Family Gathering to be held in San Diego, California.

The “Home” and “ECD Studies” pages were updated to include a clinical study being done by Hoffman-LaRoche to assess the efficacy and safety of vemurafenib in patients with BRAF V600 mutations for whom vermurafenib is deemed the best treatment option by the treating physician.

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:

  1. An article published in Oncologist.  The article is entitled, “Hand-Schuller-Christian Disease and Erdheim-Chester Disease: Coexistence and Discrepancy ” and includes an abstract.
  2. An article published in Cancer Res Treat.  The article is entitled, “Commentary on “a case of erdheim-chester disease with asymptomatic renal involvement” and is without an abstract.
  3. An article published in Cancer Res Treat.  The article is entitled, “Reply to commentary on “a case of erdheim-chester disease with asymptomatic renal involvement” and is without an abstract.
  4. An article published in Duodecim.  The article is entitled, “Thirst and extensive bone lesions in a previously basically healthy woman” and includes an abstract.

Links were added to the list of published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page.  They are:

  1. Lee HJ, Kim TM
    Reply to commentary on “a case of erdheim-chester disease with asymptomatic renal involvement”
    Cancer Res Treat. 2012 Dec;44(4):280
  2. Li Cavoli G
    Commentary on “a case of erdheim-chester disease with asymptomatic renal involvement”
    Cancer Res Treat. 2012 Dec;44(4):279

The timeline of organizational accomplishments on the “ECD Global Alliance” page was updated to show recent accomplishments of the organization.

The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.

Chat summaries were added to the “Chat Room” page.

Broken links were corrected on the list of published articles, accessible without charge on the internet, as found on the “Technical Papers | Published Papers” page.

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    DeRidder, LA 70634 USA

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